Abstract

AIDS: Caregivers tending to HIV-positive people frequently need support and guidance. The period prior to death is an especially difficult time for caregivers because the final stage of illness often occurs after a long period of debilitation or fluctuation. During this unsteady period, caregivers should also tend to their own physical and emotional needs, and mobilize a network of individuals who can serve as a support system for both the patient and the caregiver. As death approaches, caregivers should avoid feelings of helplessness. The autonomy and decisionmaking capacity of the HIV-positive person must be respected as long as it is possible. Early preparation of legal documents is critical because of the possible complications associated with neurological impairment and dementia. Family and interpersonal conflicts that often follow death can be ameliorated with the help of a medical professional.