Caregiver burden and symptom distress in people with cancer receiving hospice care

Abstract

Purpose/objectives: To examine the relationship between caregiver burden and symptom distress in patients with terminal cancer who are enrolled in hospice.

Design: Descriptive, quantitative.

Setting: A large, metropolitan, nonprofit-based organization in west central Florida.

Sample: Convenience sample of 30 patient-caregiver dyads enrolled in hospice.

Methods: Caregivers completed the Caregiver Reaction Scale to measure the level of caregiver burden; patients completed the Adopted Symptom Distress Scale. Results were correlated using a Pearson correlation.

Main research variables: Symptom distress and caregiver burden.

Findings: The patient sample exhibited low symptom distress, and the caregiver sample exhibited moderate caregiver burden. A statistically significant moderate correlation existed between symptom distress and caregiver burden.

Conclusions: The significant moderate correlation confirms the idea that caregiver burden and patient symptom distress are related. Future studies are needed to obtain a more representative sample of caregivers of patients closer to death, even if those patients are nonresponsive.

Implications for nursing practice: This information can assist hospice nurses in assessing and formulating targeted care for symptom distress and caregiver burden in their patients,