Information provision to cancer patients: a practical example of identifying the need for changes in practice from the Dorset Cancer Centre

Abstract

The aim of this study was to produce a patient-centred information strategy based on the results of a local survey of cancer patients about the information they receive and their information needs. An anonymous patient survey was distributed at the Dorset Cancer Centre, Poole Hospital, the regional cancer centre for Dorset, in the South-west of England. All patients attending the Cancer Centre during 1 week in September 1999 were asked to complete a questionnaire on patient experience of the Cancer Centre, information sources, receipt and quality of Centre information, and perception of information requirements. Two hundred and eighty-two were returned. Most respondents had accessed information from a number of sources. Written Cancer Centre information had been given to most patients, and was generally perceived to be useful, understandable and timely. However, most patients had received information 'all at once', from a single professional group, and a notable proportion did not recall discussing it with staff. Furthermore, most patients indicated that information should also be provided to families and professionals. Seven items of information were selected as valuable by the majority of patients, with many others listed. There was a great deal of satisfaction with the current content of the patient information provided. However, the distribution system was shown to be in need of improvement. A new information strategy has been developed in the light of these findings.