Meeting the health care needs of persons with disabilities
- PMID: 12101877
- PMCID: PMC2690111
- DOI: 10.1111/1468-0009.t01-1-00008
Meeting the health care needs of persons with disabilities
Abstract
The Agency for Healthcare Research and Quality (AHRQ) has established the Office of Priority Populations Research and is currently developing a research agenda to improve health care for persons with disability (PWDs). This article describes the background of and potential for the AHRQ disability agenda and some of the challenges ahead and considers future directions for disability-related health services research. Strategies for this agenda might include ensuring the inclusion of PWDs in current and future health care research studies and database development; support for studies and data focusing exclusively on PWDs; and support for studies of the challenges common to all or most of the priority populations.
Similar articles
-
The first national reports on United States healthcare quality and disparities.J Nurs Care Qual. 2004 Oct-Dec;19(4):316-21. doi: 10.1097/00001786-200410000-00005. J Nurs Care Qual. 2004. PMID: 15535536
-
A research roadmap for complementary and alternative medicine - what we need to know by 2020.Forsch Komplementmed. 2014;21(2):e1-16. doi: 10.1159/000360744. Epub 2014 Mar 24. Forsch Komplementmed. 2014. PMID: 24851850
-
Creating capacity: establishing a health education research agenda for special populations.Health Educ Q. 1995 Aug;22(3):390-405. doi: 10.1177/109019819402200309. Health Educ Q. 1995. PMID: 7591791
-
Managed care and people with disabilities: framing the issues.Arch Phys Med Rehabil. 1998 Oct;79(10):1312-6. doi: 10.1016/s0003-9993(98)90283-0. Arch Phys Med Rehabil. 1998. PMID: 9779692 Review.
-
The intersection of disability and healthcare disparities: a conceptual framework.Disabil Rehabil. 2015;37(7):632-41. doi: 10.3109/09638288.2014.938176. Epub 2014 Jul 25. Disabil Rehabil. 2015. PMID: 25060038 Review.
Cited by
-
Disability-friendly healthcare at public health facilities in Bangladesh: a mixed-method study to explore the existing situation.BMC Health Serv Res. 2022 Sep 20;22(1):1178. doi: 10.1186/s12913-022-08538-6. BMC Health Serv Res. 2022. PMID: 36127659 Free PMC article.
-
Challenges to accessing gynecological care for women with disabilities in Almaty, Kazakhstan.AJOG Glob Rep. 2025 May 2;5(2):100502. doi: 10.1016/j.xagr.2025.100502. eCollection 2025 May. AJOG Glob Rep. 2025. PMID: 40585883 Free PMC article.
-
A new disability-related health care needs assessment tool for persons with brain disorders.J Prev Med Public Health. 2013 Sep;46(5):282-90. doi: 10.3961/jpmph.2013.46.5.282. Epub 2013 Sep 30. J Prev Med Public Health. 2013. PMID: 24137530 Free PMC article.
-
Pediatrician perspectives on barriers and facilitators to discharge instruction comprehension and adherence for parents of children with medical complexity.J Hosp Med. 2024 Apr;19(4):278-286. doi: 10.1002/jhm.13319. Epub 2024 Mar 6. J Hosp Med. 2024. PMID: 38445808 Free PMC article.
-
Predicting Changes in Pediatric Medical Complexity using Large Longitudinal Health Records.AMIA Annu Symp Proc. 2018 Apr 16;2017:1838-1847. eCollection 2017. AMIA Annu Symp Proc. 2018. PMID: 29854255 Free PMC article.
References
-
- American College of Epidemiology Ethics Guidelines. Annals of Epidemiology. 2000;10:487–97. - PubMed
-
- Charlton JI. Berkeley and Los Angeles: University of California Press; 1998. Nothing about Us without Us: Disability Oppression and Empowerment.
-
- Clancy CM, Eisenberg JM. Outcomes Research: Measuring the End Results of Health Care. Science. 1998;282:245–6. 10.1126/science.282.5387.245. - DOI - PubMed
-
- Curtis JR. The “Patient-Centered” Outcomes of Critical Care: What Are They and How Should They Be Used? New Horizons. 1998;6:26–32. - PubMed
Publication types
MeSH terms
LinkOut - more resources
Full Text Sources
Medical