Deafness, culture, and choice
- PMID: 12356951
- PMCID: PMC1733648
- DOI: 10.1136/jme.28.5.284
Deafness, culture, and choice
Abstract
The recent controversy surrounding the choice, by a deaf lesbian couple, to have children who were themselves deaf, has focused attention on the ethics of choosing (apparent) disabilities for children. Deaf activists argue that deafness is not a disability, but instead the constitutive condition of access to a rich culture. Being deaf carries disadvantages with it, but these are a product of discrimination, not of the condition itself. It is, however, implausible to think that all the disadvantages which stem from deafness are social in origin. Moreover, though it may be true that being deaf carries with it the important compensation of access to a rich culture, no physical condition is required for such access. Cultures are simply the kind of things to which we are born, and therefore to which the children of deaf parents, hearing or deaf, normally belong. Thus these parents are making a mistake in choosing deafness for their children. Given their own experience of isolation as children, however, it is a mistake which is understandable, and our reaction to them ought to be compassion, not condemnation.
Similar articles
-
Are attempts to have impaired children justifiable?J Med Ethics. 2002 Oct;28(5):286-8. doi: 10.1136/jme.28.5.286. J Med Ethics. 2002. PMID: 12356952 Free PMC article.
-
Lesbian couple create a child who is deaf like them.J Med Ethics. 2002 Oct;28(5):283. doi: 10.1136/jme.28.5.283. J Med Ethics. 2002. PMID: 12356950 Free PMC article.
-
Designing deaf babies and the question of disability.J Deaf Stud Deaf Educ. 2005 Summer;10(3):311-5. doi: 10.1093/deafed/eni031. Epub 2005 Apr 27. J Deaf Stud Deaf Educ. 2005. PMID: 15858071
-
Letting the deaf be deaf. Reconsidering the use of cochlear implants in prelingually deaf children.Hastings Cent Rep. 1997 Jul-Aug;27(4):14-21. Hastings Cent Rep. 1997. PMID: 9271717 Review.
-
Education and debate: Deaf lesbians, "designer disability," and the future of medicine.BMJ. 2002 Oct 5;325(7367):771-3. doi: 10.1136/bmj.325.7367.771. BMJ. 2002. PMID: 12364309 Free PMC article. Review. No abstract available.
Cited by
-
Hearing Parents' Voices: Parental Refusal of Cochlear Implants and the Zone of Parental Discretion.J Bioeth Inq. 2022 Mar;19(1):143-150. doi: 10.1007/s11673-021-10154-8. Epub 2021 Dec 16. J Bioeth Inq. 2022. PMID: 34918184 Free PMC article.
-
There is a difference between selecting a deaf embryo and deafening a hearing child.J Med Ethics. 2004 Oct;30(5):510-2. doi: 10.1136/jme.2002.001891. J Med Ethics. 2004. PMID: 15467091 Free PMC article.
-
The Ethics of Translational Audiology.Audiol Res. 2022 May 13;12(3):273-280. doi: 10.3390/audiolres12030028. Audiol Res. 2022. PMID: 35645198 Free PMC article. Review.
-
Deafness, genetics and dysgenics.Med Health Care Philos. 2006;9(1):25-31. doi: 10.1007/s11019-005-2852-9. Med Health Care Philos. 2006. PMID: 16645795
-
Newborn genetic screening for hearing impairment: a preliminary study at a tertiary center.PLoS One. 2011;6(7):e22314. doi: 10.1371/journal.pone.0022314. Epub 2011 Jul 19. PLoS One. 2011. PMID: 21811586 Free PMC article.
MeSH terms
LinkOut - more resources
Full Text Sources
Medical