Genetics education for midwives

Abstract

Advances in genetic science have increased the number of health interventions undertaken with regard to genetic disorders. Genetics is therefore expanding into the domains of national screening programmes, disease prediction and pharmacogenetics. This expansion means that a growing range of health professionals, including midwives, need skills and knowledge in genetics in order to take on new roles. The government is increasingly recognising the importance of genetic science for health and an expansion of genetic services is now underway. It is acknowledged that education of a wide range of health professionals will be required, although current educational provision does not reflect this. A growing range of genetic disorders can now be detected by prenatal tests, including chromosome disorders and single gene disorders. Pregnant women may choose to discuss their concerns with midwives, who therefore need to understand genetic testing, and know what disorders can be detected and when to refer women to specialist genetic services. Their clients would also benefit from midwives having sufficient skills to understand the processes of genetic counselling, which would enable them to discuss the decision to undertake a test, help women to cope with the result and minimise its effects on the family. Educational provision on genetics for midwives is insufficient and has not been coherently planned. A strategy is being developed to provide a framework for genetics education for front-line healthcare professionals. This aims to meet the needs of practising professionals who are already being asked to take on genetic roles, and also ensure future practitioners receive pre-registration education in genetics. Practising midwives and their teachers are invited to take part in this process.