Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2003 Apr 23:1:11.
doi: 10.1186/1477-7525-1-11.

Quality of Life measures for dementia

Affiliations
Review

Quality of Life measures for dementia

Rebecca E Ready et al. Health Qual Life Outcomes. .

Abstract

Over the past 10 years, several instruments developed specifically for the assessment of Quality of Life (QOL) in dementia have been introduced. The goal of the current review is to present, compare, and critique existing QOL measures for dementia populations to assist investigators and clinicians in selecting the optimal inventory for their specific needs. Nine measures are reviewed with a focus on conceptualizations of QOL, psychometric data, targeted patient population, and administration and scoring procedures. Critical discussion and comparison of the instruments is presented after the scales are described individually. Differences in definitions of QOL, assessment procedures, and methods that were used to establish the validity of instruments are highlighted. An important direction for future research on QOL scales for dementia is to establish their responsiveness to change over time. It will also be important to identify factors that affect reports of QOL, determine the how perceived QOL affects decisions regarding the care of dementia patients, and evaluate interventions to increase patient QOL.

PubMed Disclaimer

References

    1. Small GW, Rabins PV, Barry PP, Buckholtz NS, DeKosky ST, Ferris SH, Finkel SI, Gwyther LP, Khachaturian ZS, Lebowitz BD, McRae TD, Morris JC, Oakley F, Schneider LS, Streim JE, Sunderland T, Teri LA, Tune LE. Diagnosis and treatment of Alzheimer disease and related disorders: Consensus statement of the American Association for Geriatric Psychiatry, the Alzheimer's Association, and the American Geriatrics Society. Journal of the American Medical Association. 1997;267:1363–1371. - PubMed
    1. Whitehouse PJ, Orgogozo JM, Becker RE, Gauthier S, Pontecorvo M, Erzigkeit H, Rogers S, Mohs RC, Bodick N, Bruno G, Dal-Bianco P. Quality-of-Life assessment in dementia drug development: Position paper from the International Working Group on Harmonization of Dementia Drug Guidelines. Alzheimer Disease and Associated Disorders. 1997;11:56–60. - PubMed
    1. Lawton MP. Quality of life in Alzheimer disease. Alzheimer Disease and Associated Disorders. 1994;8(Suppl.6):138–150. - PubMed
    1. Lawton MP. Assessing quality of life in Alzheimer disease research. Alzheimer Disease and Associated Disorders. 1997;11(Suppl.6):91–99. - PubMed
    1. Lawton MP, van Haitsma K, Perkinson M, Ruckdeschel K. Observed affect and quality of life in dementia: Further affirmations and problems. Journal of Mental Health and Aging. 1999;5

Publication types