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. 2003 Sep 9;61(5):674-6.
doi: 10.1212/wnl.61.5.674.

Parry-Romberg syndrome: a global survey of 205 patients using the Internet

Jon Stone  1
Affiliations

Parry-Romberg syndrome: a global survey of 205 patients using the Internet

Jon Stone. Neurology. .

Abstract

Parry-Romberg syndrome (PRS) is a rare neurocutaneous disorder characterized by progressive facial hemiatrophy. In this study, 205 patients with PRS were surveyed using the Internet. Estimates of the frequency of limb involvement (19%), epilepsy (11%), and other clinical and etiologic features were obtained. There was a wide range of age at onset and considerable diagnostic overlap with scleroderma "en coup de sabre."

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