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Clinical Trial
. 2003 Oct;33(4):252-8.
doi: 10.1016/s1054-139x(03)00101-0.

Health-related quality of life in youth: a comparison between adolescents and young adults with uncomplicated epilepsy and healthy controls

Lena K A Räty  1 , Bodil M Wilde Larsson, Birgitta A Söderfeldt
Affiliations
Clinical Trial

Health-related quality of life in youth: a comparison between adolescents and young adults with uncomplicated epilepsy and healthy controls

Lena K A Räty et al. J Adolesc Health. 2003 Oct.

Abstract

Purpose: To describe health-related quality of life (HRQOL) in adolescents and young adults with uncomplicated epilepsy and to compare it with a random sample of the general population.

Methods: Young people, aged 13-22 years, meeting the criteria and registered in four Swedish hospitals answered questionnaires (n = 158/193) on HRQOL together with 282 (n = 282/390) random controls living in the same areas in Sweden. The instruments used were "I think I am," "Youth Self Report," "Sense of coherence," and "Family APGAR." Data were analyzed by using factorial analysis of variance.

Results: Girls had a poorer HRQOL than boys. The epilepsy group reported lower competence (i.e., they were less active, had lower social competence and poorer school achievement). Both groups had an overall positive self-esteem. Differences between girls in the epilepsy and control groups were small, whereas differences among boys were more evident. Older age was related to poorer HRQOL in both groups.

Conclusions: This study points out the importance of being observant of signs of stigmatization in adolescents with epilepsy.

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