Developing a programme of transitional care for adolescents with juvenile idiopathic arthritis: results of a postal survey

Abstract

Objectives: To explore the transitional needs of adolescents with juvenile idiopathic arthritis (JIA), as perceived by a range of professionals, and to examine how these needs may be addressed within a structured programme of transitional care.

Methods: Postal surveys (n = 1670) were distributed to key professionals employed in health, social support, education and vocation.

Results: Surveys were completed by 478 individuals. The majority of respondents (91%) were currently active in the care of adolescents with JIA. Planning for transitional care was perceived to be important for both adolescents and parents and to require multidisciplinary involvement. Respondents rated a wide range of resources to be important in supporting adolescents, including self-medication teaching packages and social skills training. A number of barriers to providing transitional care were identified, including inadequate resources, coordination and training.

Conclusion: Transitional care in the context of JIA is perceived as necessary by a wide variety of professionals.