Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Clinical Trial
. 2004 May 8;328(7448):1099.
doi: 10.1136/bmj.328.7448.1099.

Training carers of stroke patients: randomised controlled trial

Affiliations
Clinical Trial

Training carers of stroke patients: randomised controlled trial

Lalit Kalra et al. BMJ. .

Abstract

Background: Informal care givers support disabled stroke patients at home but receive little training for the caregiving role.

Objective: To evaluate the effectiveness of training care givers in reducing burden of stroke in patients and their care givers.

Design: A single, blind, randomised controlled trial.

Setting: Stroke rehabilitation unit.

Subjects: 300 stroke patients and their care givers.

Interventions: Training care givers in basic nursing and facilitation of personal care techniques.

Main outcome measures: Cost to health and social services, caregiving burden, patients' and care givers' functional status (Barthel index, Frenchay activities index), psychological state (hospital anxiety and depression score), quality of life (EuroQol visual analogue scale) and patients' institutionalisation or mortality at one year.

Results: Patients were comparable for age (median 76 years; interquartile range 70-82 years), sex (53% men), and severity of stroke (median Barthel index 8; interquartile range 4-12). The costs of care over one year for patients whose care givers had received training were significantly lower (10,133 pounds sterling v 13,794 pounds sterling (18,087 dollars v 24,619 dollars; 15,204 euros v 20,697 euros); P = 0.001). Trained care givers experienced less caregiving burden (care giver burden score 32 v 41; P = 0.0001), anxiety (anxiety score 3 v 4; P = 0.0001) or depression (depression score 2 v 3; P = 0.0001) and had a higher quality of life (EuroQol score 80 v 70; P = 0.001). Patients' mortality, institutionalisation, and disability were not influenced by caregiver training. However, patients reported less anxiety (3 v 4.5; P < 0.0001) and depression (3 v 4; P < 0.0001) and better quality of life (65 v 60; P = 0.009) in the caregiver training group.

Conclusion: Training care givers during patients' rehabilitation reduced costs and caregiver burden while improving psychosocial outcomes in care givers and patients at one year.

PubMed Disclaimer

Figures

Figure 1
Figure 1
Flow of participants through the trial

Comment in

References

    1. Anderson CS, Linto J, Stewart-Wynne EG. A population based assessment of the impact and burden of care-giving for long-term stroke survivors. Stroke 1995;26: 843-9. - PubMed
    1. Bosanquet N, Franks P. Stroke care: reducing the burden of disease. London: Stroke Association, 1998.
    1. Dewey HM, Thrift AG, Mihalopoulos C, Carter R, Macdonell RA, McNeil JJ, et al. Informal care for stroke survivors: results from the North East Melbourne stroke incidence study (NEMESIS). Stroke 2002;33: 1028-33. - PubMed
    1. Wade DT, Legh-Smith J, Hewer RL. Effects of living with and looking after survivors of a stroke. BMJ 1986;293: 418-20. - PMC - PubMed
    1. Scholte op Reimer WJ, de Haan RJ, Rijnders PT, Limburg M, van den Bos GA. The burden of caregiving in partners of long-term stroke survivors. Stroke 1998;29: 1605-11. - PubMed

Publication types