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Review
. 2004 Jul 31;329(7460):277-9.
doi: 10.1136/bmj.329.7460.277.

Obstacles to conducting epidemiological research in the UK general population

Hester J T Ward  1 , Simon N Cousens, Blaire Smith-Bathgate, Margaret Leitch, Dawn Everington, Robert G Will, Peter G Smith
Affiliations
Review

Obstacles to conducting epidemiological research in the UK general population

Hester J T Ward et al. BMJ. .

Abstract

Experiences from a national case-control study of Creutzfeldt-Jakob disease show the tensions between protecting individual patients' confidentiality and the access required for the benefit of public health

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Figures

Figure 1
Figure 1
Vacuole in brain of person with Creutzfeldt-Jakob disease: issues of confidentiality are hampering research Credit: JOUBERT/PHANIE/REX
See this image and copyright information in PMC

Comment in

References

    1. Strobl J, Cave E, Walley T. Data protection legislation: interpretation and barriers to research. BMJ 2000;321: 890-2. - PMC - PubMed
    1. Al-Shahi R, Warlow C. Using patient-identifiable data for observational research and audit. BMJ 2000;321: 1031-2. - PMC - PubMed
    1. General Medical Council. Confidentiality. London: GMC, 2000.
    1. British Medical Association. Confidentiality and disclosure of health information. London: BMA, 1999.
    1. Medical Research Council. Professional information in medical research. London: MRC, 2000.

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