A pilot study to determine support during the pre-treatment phase of early prostate cancer

Abstract

While we know about physicians' involvement in the diagnosis and treatment of prostate cancer, little is known about others who assist men in dealing with the diagnosis and treatment choices, once they are diagnosed with early prostate cancer, but not yet treated. This pilot study explores if men use other sources of support and the roles and functions of support providers. We conducted separate individual interviews with 21 men diagnosed with prostate cancer and 18 persons identified by the diagnosed men as their support provider. Some of the men diagnosed with prostate cancer reported not relying on a support provider, others identified other men already treated for prostate cancer, others' their partner. The provided support consisted of informational and emotional support. Men already treated for prostate cancer provided informational support. Spousal support depended on the diagnosed partner's willingness to accept emotional and/or informational support. Due to the variation in diagnosed men's support, we recommend that physicians inquire about patients' sources of and interest in support. This will reveal which patients rely almost exclusively on physicians, when deciding on a certain treatment.