Enhanced communication between care professionals and patients with hemophilia by using a web enabled electronic logbook

Abstract

Hemophilia is an X-linked clotting disorder. Treatment consists of intravenous substitution of the missing clotting factor. Although very effective, clotting factor products are very expensive. Most of the clotting factors are administered at home by the patients themselves. Documentation of the amount used and reasons for administrating of these scarce and expensive clotting factors in a paper logbook is a problem. The use of an electronic logbook results in improved compliance in documentation of clotting factor use and therefore in improved quality of treatment of patients with hemophilia.