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Review
. 2005 Sep;147(3 Suppl):S89-93.
doi: 10.1016/j.jpeds.2005.08.006.

Challenges in implementing a successful newborn cystic fibrosis screening program

Anne Marie Comeau  1 , Richard Parad, Robert Gerstle, Brian P O'Sullivan, Henry L Dorkin, Mark Dovey, Kenan Haver, Tom Martin, Roger B Eaton
Affiliations
Review

Challenges in implementing a successful newborn cystic fibrosis screening program

Anne Marie Comeau et al. J Pediatr. 2005 Sep.

Abstract

Objective: To identify necessary components of a successful cystic fibrosis (CF) newborn screening (NBS) program.

Study design: The approach to CF NBS used by the Massachusetts NBS program was examined.

Results: Several key components were identified that should be addressed when a state has made the decision to screen, and well in advance of actual implementation. These components include (1) inclusion of CF center directors in the development process; (2) logistics of choosing a screening algorithm relative to practices in place and community wishes; (3) projections of medical service needs from specific algorithms; (4) identification of critical reporting components; (5) identification of critical follow-up components; and (6) recognition of educational needs.

Conclusions: Careful examination of a wide variety of issues is needed to ensure optimal implementation of NBS for CF.

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