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. 2005 Nov;12 Suppl 2(Suppl 2):70-6.
doi: 10.1177/1073274805012004s10.

Lessons learned from community-based participatory research in Indian country

Linda Burhansstipanov  1 , Suzanne Christopher, Sister Ann Schumacher
Affiliations

Lessons learned from community-based participatory research in Indian country

Linda Burhansstipanov et al. Cancer Control. 2005 Nov.

Abstract

The purpose of this article is to share lessons learned from implementing community-based participatory research (CBPR) in Indian Country that may be generalizable to other medically underserved communities. CBPR is currently included in multiple grant announcements by the National Institute of Health and Centers for Disease Control and Prevention, but information about this methodology vs traditional research methodology is often misleading. This article addresses some common mistakes made by academic research institutes by sharing what we have learned about how CBPR can be implemented in a respectful manner. The majority of tribal Nations prefer, if not mandate, that CBPR be used in most proposed studies involving their communities today.

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Figures

Figure
Figure
Reasons why Natives are resistant to taking part in traditional research methodologies. From Burhansstipanov L. Developing culturally competent community-based interventions. In: Weiner D, ed. Cancer Research Interventions among the Medically Underserved. Westport, Conn: Greenwood Publishing; 1999:167-183. Reprinted with permission of Greenwood Publishing Group Inc, Westport, CT.
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References

    1. Israel BA, Eng E, Schulz AJ, et al., editors. Methods in Community-Based Participatory Research for Health. Jossey-Bass; San Francisco, Calif: 2005.
    1. Burhansstipanov L, Dresser CM. Native American Monograph #1: Documentation of the Cancer Research Needs of American Indians and Alaska Natives. National Cancer Institute; Bethesda, Md: 1994. NIH Pub No 94-3603.
    1. Burhansstipanov L. Overcoming Psycho-social Barriers to Native American Cancer Screening research. National Cancer Advisory Board. Conference Transcripts: Recruitment and Retention of Minority Participants in Clinical Cancer Research. US Dept of Health and Human Services, National Cancer Institute, National Institutes of Health; 1996. pp. 109–127. NIH Pub No 96-4182.
    1. Burhansstipanov L. Lessons learned from Native American Cancer Prevention, Control and Supportive Care Projects. Asian Am Pac Isl J Health. 1998;6:91–99. - PubMed
    1. Burhansstipanov L. Developing culturally competent community-based interventions. In: Weiner D, editor. Cancer Research Inten/entions among the Medically Underserved. Greenwood Publishing; Westport, Conn: 1999. pp. 167–183.

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