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Review
. 2006 Feb 4;332(7536):299-301.
doi: 10.1136/bmj.332.7536.299.

Implications of data protection legislation for family history

Anneke Lucassen  1 , Michael Parker, Robert Wheeler
Affiliations
Review

Implications of data protection legislation for family history

Anneke Lucassen et al. BMJ. .

Abstract

Clinical geneticists currently collect and store information on family history without explicit consent. Are they flouting the Data Protection Act?

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Figures

Figure 1
Figure 1
Ms White's family history
See this image and copyright information in PMC

Comment on

  • BMJ. 332:297.

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References

    1. Botkin JR, McMahon WM, Smith KR, Nash JE. Privacy and confidentiality in the publication of pedigrees: a survey of investigators and biomedical journals. JAMA 1998;279: 1808-12. - PubMed
    1. Parker M, Lucassen AM. Genetic information: a joint account? BMJ 2004;329: 165-7. - PMC - PubMed
    1. Lucassen A, Parker M. Confidentiality and serious harm in genetics—preserving the confidentiality of one patient and preventing harm to relatives. Eur J Hum Genet 2004;12: 93-7. - PubMed
    1. Schedule 3. Data Protection Act 1998. London: Stationery Office, 1998.
    1. Joint Committee on Medical Genetics. Consent and confidentiality. London: British Society for Human Genetics, Royal College of Pathologists, Royal College of Physicians (in press).