The Human Genome Project: an examination of its challenge to the technological imperative
- PMID: 16610129
- DOI: 10.1080/14636770500349791
The Human Genome Project: an examination of its challenge to the technological imperative
Abstract
Increasingly scientists and governmental policymakers find themselves leaving their laboratories and office cubicles to share information and decision making with the general public. Contributing in large part to the development of science communication via the mass media has been the Human Genome Project (HGP). Examining the development of the HGP in the United States beginning with the early 1970s helps to establish why and how the general public has become a major player in science policy in the United States during the past quarter century, especially in regard to the ethical, legal, and social implications of research on human genetics. Calling into question the technological imperative--the idea that all things scientific must be pursued without question--the general public came to realize that exerting control over research funding is the key to participating in the scientific process.
Similar articles
-
Self-critical federal science? The ethics experiment within the U.S. Human Genome Project.Soc Philos Policy. 1996 Summer;13(2):63-95. doi: 10.1017/s0265052500003460. Soc Philos Policy. 1996. PMID: 11653300 No abstract available.
-
The Ethical, Legal, and Social Implications Research Program at the National Human Genome Research Institute.Kennedy Inst Ethics J. 1997 Sep;7(3):291-8. doi: 10.1353/ken.1997.0025. Kennedy Inst Ethics J. 1997. PMID: 11660360
-
The Bermuda Triangle: The Pragmatics, Policies, and Principles for Data Sharing in the History of the Human Genome Project.J Hist Biol. 2018 Dec;51(4):693-805. doi: 10.1007/s10739-018-9538-7. J Hist Biol. 2018. PMID: 30390178 Free PMC article.
-
Human genome research and the public interest: progress notes from an American science policy experiment.Am J Hum Genet. 1994 Jan;54(1):121-8. Am J Hum Genet. 1994. PMID: 8279462 Free PMC article. Review.
-
The human genome project: past, present, and future.Science. 1990 Apr 6;248(4951):44-9. doi: 10.1126/science.2181665. Science. 1990. PMID: 2181665 Review.
Cited by
-
The New Precision Stewards?J Pers Med. 2022 Aug 12;12(8):1308. doi: 10.3390/jpm12081308. J Pers Med. 2022. PMID: 36013256 Free PMC article.
-
The ethics of genomic medicine: redefining values and norms in the UK and France.Eur J Hum Genet. 2021 May;29(5):780-788. doi: 10.1038/s41431-020-00798-2. Epub 2021 Jan 17. Eur J Hum Genet. 2021. PMID: 33456054 Free PMC article.
-
Envisioning a new era: Complete genetic information from routine, telomere-to-telomere genomes.Am J Hum Genet. 2023 Nov 2;110(11):1832-1840. doi: 10.1016/j.ajhg.2023.09.011. Am J Hum Genet. 2023. PMID: 37922882 Free PMC article. Review.
Publication types
MeSH terms
LinkOut - more resources
Miscellaneous