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. 2005:2005:515-9.

SPIN query tools for de-identified research on a humongous database

Clement J McDonald  1 , Paul Dexter, Gunther Schadow, Henry C Chueh, Greg Abernathy, John Hook, Lonnie Blevins, J Marc Overhage, Jules J Berman
Affiliations

SPIN query tools for de-identified research on a humongous database

Clement J McDonald et al. AMIA Annu Symp Proc. 2005.

Abstract

The Shared Pathology Informatics Network (SPIN), a research initiative of the National Cancer Institute, will allow for the retrieval of more than 4 million pathology reports and specimens. In this paper, we describe the special query tool as developed for the Indianapolis/Regenstrief SPIN node, integrated into the ever-expanding Indiana Network for Patient care (INPC). This query tool allows for the retrieval of de-identified data sets using complex logic, auto-coded final diagnoses, and intrinsically supports multiple types of statistical analyses. The new SPIN/INPC database represents a new generation of the Regenstrief Medical Record system - a centralized, but federated system of repositories.

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Figures

Figure 1
Figure 1
Step 1- Form (for defining cohorts) with two menus open for specifying search criteria on a selected variable.
Figure 2
Figure 2
Screen used to specify Statistical analysis plan
See this image and copyright information in PMC

References

    1. National Institutes of Health. Url: http://www.nci.nih.gov/
    1. Consented High-performance Indexing and Retrieval of Pathology Specimens (CHIRPS) - Namini AH, Berkowicz DA, Kohane IS, Chueh HC. A Submission Model for Use in the Indexing, Searching, and Retrieval of Distributed Pathology Case and Issue Specimen. Medinfo. 2004;1264–67 - PubMed
    1. Local Health Information Infrastructure - Information for Health-A Strategy for Building the National Health Information Infrastructure. Report and Recommendations from the National Committee on Vital and Health Statistics, Washington, D.C., Nov 15, 2001.
    1. Overhage JM, Suico J, McDonald CJ. Electronic Laboratory Reporting: Barriers, Solutions and Findings. J Public Health Manag Pract. 2001 Nov;7(6):60–6. - PubMed
    1. McDonald CJ, Overhage JM, Barnes M, et al. The Indiana Network for Patient Care An Evolving Local Health Information Infrastructure. Health Affairs (in press). - PubMed

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