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Comparative Study
. 2005:2005:799-803.

Online communication and support for cancer patients: a relationship-centric design framework

Jacob B Weiss  1 , Nancy M Lorenzi
Affiliations
Comparative Study

Online communication and support for cancer patients: a relationship-centric design framework

Jacob B Weiss et al. AMIA Annu Symp Proc. 2005.

Abstract

Dealing with a cancer diagnosis and cancer treatment involves communication among clinicians, patients, families, friends and others affected by the illness. The hypothesis of this research is that an informatics system can effectively support the communication needs of cancer patients and their informal caregivers. Two design frameworks for online cancer communication are defined and compared. One is centered primarily on the users' interpersonal relationships, and the other is centered on the clinical data and cancer information. Five types of clinical and supportive relationships were identified and supported by in-depth interviews with cancer patients and their informal caregivers. Focusing the design of an online cancer communication system around the interpersonal relationships of patients and families may be an important step towards designing more effective paradigms for online cancer care and support.

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Figures

Figure 1
Figure 1
Patient-Caregiver Integrated Network. The thickness of the lines represents the complexity and uniqueness of each relationship.
See this image and copyright information in PMC

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