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. 2006 Jul;39(1):121-4.
doi: 10.1016/j.jadohealth.2005.09.008.

Transition to adulthood in congenital heart disease: missed adolescent milestones

Maureen E Lyon  1 , Karen Kuehl, Robert McCarter
Affiliations

Transition to adulthood in congenital heart disease: missed adolescent milestones

Maureen E Lyon et al. J Adolesc Health. 2006 Jul.

Abstract

Purpose: To determine whether adults with congenital heart disease (CHD) are better adjusted than adults with acquired heart disease (AHD).

Methods: Twenty-five adults with CHD completed the Patient Adjustment to Illness Self Report (PAIS-SR).

Results: CHD patients had good adjustment for Heath Care Orientation and Family Relations, but poorer adjustment for Vocational, Social and Domestic Environment, Sexual Relations, and Psychological Distress.

Conclusions: The needs of CHD patients are not being met.

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