[The coverage of the social consequences of the disease and the loss of autonomy in amyotrophic lateral sclerosis]

Abstract

There is no specific social answer to amyotrophic lateral sclerosis, which alters quickly autonomy of the patients. Different financial and human assistances can be set up to compensate the loss of autonomy. To date, to obtain this assistance, delays are often long; and there is no individual evaluation of the situation at home. The creation of reference centres should allow a better coverage focused on an individualized answer with a management of systems based on the nearness.