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. 2007 Jan;65(1):26-30.
doi: 10.1016/j.gie.2006.05.030.

Patients with Barrett's esophagus perceive their risk of developing esophageal adenocarcinoma as low

Michelle E Kruijshaar  1 , Peter D Siersema, A Cecile J W Janssens, Marjon Kerkhof, Ewout W Steyerberg, Marie-Louise Essink-Bot; CYBAR Study Group
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Patients with Barrett's esophagus perceive their risk of developing esophageal adenocarcinoma as low

Michelle E Kruijshaar et al. Gastrointest Endosc. 2007 Jan.

Abstract

Background: The risk of developing esophageal adenocarcinoma (EAC) for patients with Barrett's esophagus (BE) is approximately 0.5% per year.

Objective: To investigate how patients with BE estimate and perceive their risk of developing EAC.

Design: Questionnaire study.

Setting: Patients with BE who were undergoing surveillance endoscopy based on histologic and flow cytometric results.

Patients: A total of 192 patients with BE were included.

Main outcome measurements: Individual patients were asked to estimate the numerical risk to develop EAC for patients with BE in general and for themselves. How patients perceived their own risk was measured on a scale from "very small" to "very large."

Results: At least 1 question was filled out by 169 patients (88% response). Sixty percent of respondents underestimated the numerical risk for patients with BE, in general, to develop EAC, while even more patients (69%) underestimated their own risk. Most respondents perceived their own risk as very small or small (63%).

Limitations: Risk estimations may depend on the response scale used.

Conclusions: Most patients with BE underestimated the numerical risk and perceived their risk of developing EAC as (very) low. Despite a low perceived risk, all patients in this group adhered to endoscopic surveillance.

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