Meaning and measurement of caregiver outcomes

Abstract

The focus of dementia intervention research has broadened from a focus purely on the person with dementia to include the caregiver as well. Psychological, physical, social and health care utilization costs are well documented and effective caregiver interventions reported. Caregivers are crucial to many aspects of the path of dementia traveled by affected persons. They influence outcome and they are a secondary target in drug trials. Measurement of caregiver outcomes should be targeted to likely outcome, and key mediating variables should be measured too. A list of potential instruments and recommendations is provided.