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. 2007 Oct;13(7):411-6.
doi: 10.1016/j.parkreldis.2007.02.005. Epub 2007 Apr 17.

Prevalence of cervical dystonia and spasmodic torticollis in the United States general population

J Jankovic  1 , J Tsui, C Bergeron
Affiliations

Prevalence of cervical dystonia and spasmodic torticollis in the United States general population

J Jankovic et al. Parkinsonism Relat Disord. 2007 Oct.

Abstract

Purpose: To examine the prevalence of cervical dystonia (CD) in the US population.

Method: A survey consisting of relevant demographic and CD-related questions was e-mailed to 2 million people selected from the Shopper's Voice database.

Results: Across a census-weighted sample, 0.280% of 60,062 respondents (79% female, 92% Caucasian) reported a diagnosis of CD and 0.170% reported a diagnosis of ST, indicating possible prevalence of 0.390% of either/both diagnoses. Less than half (42.7%) of those who reported either diagnosis were receiving treatment.

Conclusions: CD is potentially under-diagnosed and under-treated; approaches to increase awareness of CD and its treatments are needed.

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