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. 2007 May-Jun;7(3):247-52.
doi: 10.1016/j.ambp.2007.01.004.

Community engagement in epidemiological research

Jessica N Sapienza  1 , Giselle Corbie-Smith, Sarah Keim, Alan R Fleischman
Affiliations

Community engagement in epidemiological research

Jessica N Sapienza et al. Ambul Pediatr. 2007 May-Jun.

Abstract

Objective: Engaging communities has become a critical aspect of planning and implementing health research. The role community engagement should play in epidemiological and observational research remains unclear since much of this research is not directly generated by community concerns and is not interventional in nature. The National Children's Study (NCS), an observational longitudinal study of 100,000 children and their families, provides a model to help guide the development of community engagement strategies in epidemiologic research.

Methodology: This manuscript describes community engagement activities of the NCS during the planning phases of the study.

Results: There are many challenges of community engagement in epidemiologic research particularly before the actual research sites are determined. After communities of interest are designated many further issues must be resolved, including: defining the specific community, determining which residents or institutions represent the identified community, and developing trust and rapport through respectful engagement.

Conclusions: Community engagement is critical to the long-term success of any longitudinal epidemiologic study. A partnership with the community should be formed to ensure mutual respect and the establishment of an enduring relationship. Genuine community engagement offers the hope of enhancing recruitment, retention, and participant satisfaction.

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Conflict of interest statement

Conflict of Interest Disclosure: The authors of this manuscript have no real or apparent conflicts of interest to report.

References

    1. Parkin RT. Communications with research participants and communities: foundations for best practices. J Expo Anal Environ Epidemiol. 2004;14(7):516–523. - PubMed
    1. O'Fallon LR, Dearry A. Community-based participatory research as a tool to advance environmental health sciences. Environ Health Perspect. 2002;110 2:155–9. - PMC - PubMed
    1. Leung MW, Yen IH, Minkler M. Community-based participatory research: a promising approach for increasing epidemiology's relevance in the 21st century. Int J Epidemiol. 2004 Jun;33:499–506. Epub 2004 May 20. Review. - PubMed
    1. Corbie-Smith G, Moody-Ayers S, Thrasher AD. Closing the circle between minority inclusion in research and health disparities. Arch Intern Med. 2004 Jul 12;164(13):1362–4. - PubMed
    1. Kmietowicz Z. MRC cleared of unethical research practices. BMJ. 1998 May 30;316(7145):1628. - PubMed