The impact on parents of developments in the care of children with bleeding disorders

Abstract

This research considered the impact on parents of children with bleeding disorders of the increased use of home-based treatment and greater parental responsibility for management of the condition. Although they have undoubted advantages, these changes also present parents with new challenges. Some found administration of the treatment difficult, and decisions about treatment and the everyday management of the condition can also prove problematic. Services should be aware of these issues and help parents access appropriate support.