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. 2008 Mar 25;6(3):e73.
doi: 10.1371/journal.pbio.0060073.

Research ethics recommendations for whole-genome research: consensus statement

Timothy Caulfield  1 , Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh, Eric T Juengst, Jane Kaye, Laurence Kedes, Bartha Maria Knoppers, Trudo Lemmens, Eric M Meslin, Juli Murphy, Robert L Nussbaum, Margaret Otlowski, Daryl Pullman, Peter N Ray, Jeremy Sugarman, Michael Timmons
Affiliations

Research ethics recommendations for whole-genome research: consensus statement

Timothy Caulfield et al. PLoS Biol. .

Abstract

Interest in whole-genome research has grown substantially over the past few months. This article explores the challenging ethics issues associated with this work.

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Figures

Figure 1
Figure 1. Example Governance Structure
The following governance structure is similar to other policies [22]. It is only an example and should be modified to meet the needs and scope of each research initiative. The mandate and scope of the entity's responsibilities, obligations, and powers should be clear and should be reconciled with roles and requirements of existing ethics review committees. The membership of the entity, their criteria and process for making decisions, and the review and appeal system should be publicly available in order to ensure transparency and accountability.
See this image and copyright information in PMC

References

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