Informed consent or institutionalized eugenics? How the medical profession encourages abortion of fetuses with Down syndrome
- PMID: 18771038
Informed consent or institutionalized eugenics? How the medical profession encourages abortion of fetuses with Down syndrome
Abstract
Many women are unprepared to make prenatal decisions about fetuses diagnosed with Down Syndrome because of societal pressures to have "normal" children, a negative view of persons with disabilities by many in society, a fear of legal liability by those in the medical community, the lack of genuine informed consent before undergoing genetic testing and abortion, and the failure of non-directive pre-abortion counseling in the medical community. Moreover, medical professionals fail to communicate correct and unbiased information before and during the genetic screening, diagnostic testing, and abortion decision-making process. This article addresses the contributing factors and causes that ultimately lead to a lack of informed consent and a very high abortion rate for fetuses diagnosed with Down Syndrome.
Similar articles
-
Lethal autonomy: the malfunction of the informed consent mechanism within the context of prenatal diagnosis of genetic variants.Issues Law Med. 1998 Fall;14(2):165-202. Issues Law Med. 1998. PMID: 9807244
-
Mother matters: a fresh look at prenatal genetic testing.Issues Reprod Genet Eng. 1992;5(2):141-54. Issues Reprod Genet Eng. 1992. PMID: 11653996 No abstract available.
-
From a genetic innovation to mass health programmes: the diffusion of Down's Syndrome prenatal screening and diagnostic techniques in France.Soc Sci Med. 2006 Oct;63(8):2041-51. doi: 10.1016/j.socscimed.2006.04.032. Epub 2006 Jun 23. Soc Sci Med. 2006. PMID: 16797810
-
Ethical and legal issues regarding selective abortion of fetuses with Down syndrome.Ment Retard. 1996 Aug;34(4):207-14. Ment Retard. 1996. PMID: 8828339 Review.
-
[Ethical aspects of disclosing information on prenatal screening for Down's syndrome].Orv Hetil. 2005 Feb 6;146(6):259-65. Orv Hetil. 2005. PMID: 15779814 Review. Hungarian.
Cited by
-
Genetic testing likelihood: the impact of abortion views and quality of life information on women's decisions.J Genet Couns. 2011 Apr;20(2):143-56. doi: 10.1007/s10897-010-9335-8. Epub 2010 Nov 6. J Genet Couns. 2011. PMID: 21057975
-
Is the prevalence of Down syndrome births in Hawai'i increasing?Hawaii Med J. 2011 Apr;70(4):72-6. Hawaii Med J. 2011. PMID: 21785505 Free PMC article.
-
Pregnancy Centers: A Clear Purpose of Medicine with Coherent Ethics.Linacre Q. 2020 Aug;87(3):334-340. doi: 10.1177/0024363920920397. Epub 2020 May 12. Linacre Q. 2020. PMID: 32699443 Free PMC article.
-
Fetal Pain in the First Trimester.Linacre Q. 2022 Feb;89(1):73-100. doi: 10.1177/00243639211059245. Epub 2021 Dec 6. Linacre Q. 2022. PMID: 35321491 Free PMC article.
MeSH terms
LinkOut - more resources
Medical