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Randomized Controlled Trial
. 2008 Sep;11(7):1029-38.
doi: 10.1089/jpm.2007.0294.

Legacy activities as interventions approaching the end of life

Rebecca S Allen  1 , Michelle M Hilgeman, Margaret A Ege, John L Shuster Jr, Louis D Burgio
Affiliations
Randomized Controlled Trial

Legacy activities as interventions approaching the end of life

Rebecca S Allen et al. J Palliat Med. 2008 Sep.

Abstract

We examined the efficacy of an innovative family-based intervention designed to decrease caregiving stress and increase family communication among individuals with chronic, life-limiting illnesses and their family caregivers in a randomized, contact control group design. The intervention group received three home visits in which the interventionist actively worked with the family to construct a personal Legacy, usually a scrapbook with photographs or audiotaped stories. Control group families received three supportive telephone calls. Of the 42 families that entered the project, 31 families completed follow-up assessments within 9 to 10 weeks (14 control; 17 intervention; 72% African American) for a retention rate of 74%. Intervention caregivers showed reduced caregiving stress in comparison with control group caregivers, who showed increases in stress. Intervention patients reported decreased breathing difficulty and increased religious meaning. Caregivers and patients reported greater social interaction on the part of the patient. All participants in the intervention group initiated a Legacy activity and reported that Legacy improved family communication. Legacy interventions hold promise and are simple to implement.

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Figures

FIG. 1.
FIG. 1.
Theoretical model modified from the Revised Stress and Coping Model.
See this image and copyright information in PMC

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