Lay information mediary behavior uncovered: exploring how nonprofessionals seek health information for themselves and others online
- PMID: 18974809
- PMCID: PMC2568838
- DOI: 10.3163/1536-5050.96.4.006
Lay information mediary behavior uncovered: exploring how nonprofessionals seek health information for themselves and others online
Abstract
Objectives: This research studied motivations for, barriers to, and effects of online health information seeking and explored lay information mediary behavior (LIMB) characteristics in the consumer health information domain. Lay information mediaries (LIMs) seek information on behalf or because of others, without necessarily being asked to do so or engaging in follow up, and have represented more than 50% of health information seekers in prior studies.
Methods: A web-based survey was posted on NC Health Info (NCHI) with 211 respondents, self-identified per the information need that brought them to NCHI as 20% LIMs (n = 43), 58% direct users (n = 122), and 22% health or information providers (n = 46). Follow-up telephone interviews were performed with 10% (n = 21). Interview analysis focused on lay participants (n = 15 LIMs and direct users combined). Interviewees were reclassified post-survey as 12 LIMs and 3 direct users when studied information behavior extended beyond NCHI search. Interview data were analyzed using grounded theory approach.
Results: Surveyed LIMs were 77% female (n = 33) and searched on behalf or because of family members (81%, n = 35) and people they felt "extremely close" to (77%, n = 33). LIMs reported various information seeking barriers "sometimes" to "often." LIMs searched mostly without prompting (51%, n = 22). Interview results triangulated survey findings regarding gender, tie strength, and prompting.
Conclusions: LIMB may be related to gender and relationship tie strength and appears more internally than externally motivated. Further LIMB research is warranted.
References
-
- Abrahamson J.A., Fisher K.E. “What's past is prologue”: towards a general model of lay information mediary behaviour. Inform Res [Internet] 2007. Oct, [cited 23 Jun 2008]. < http://www.InformationR.net/ir/12-4/colis/colis15.html>.
-
- Brennan P.F., Starren J.B. Consumer health informatics and telehealth. In: Shortliffe EH, Cimino JJ, eds. Biomedical informatics: computer applications in health care and biomedicine. 3rd ed. New York, NY: Springer; 2006. pp. 511–36. (Health informatics series).
-
- Stavri P.Z. Personal health information-seeking: a qualitative review of the literature. Medinfo. 2001;10(pt 2):1484–8. - PubMed
-
- Deeken J.F., Taylor K.L., Mangan P., Yabroff K.R., Ingham J.M. Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. J Pain Symptom Manage. 2003 Oct;26(4):922–53. - PubMed
-
- Hoffman J. Awash in information, patients face a lonely, uncertain road. N Y Times [Internet] 2005. Aug 14, [cited 18 Apr 2008]. < http://www.nytimes.com/2005/08/14/health/14patient.html>. - PubMed
Publication types
MeSH terms
Grants and funding
LinkOut - more resources
Full Text Sources
Molecular Biology Databases
Miscellaneous