Process evaluation of a self-management cognitive program for persons with multiple sclerosis

Abstract

Objective: Cognitive changes are highly prevalent in multiple sclerosis (MS) however evidence-based research on cognitive rehabilitation programs for this population is only beginning to emerge. This article presents results from a process evaluation of a group-based, self-management cognitive intervention program developed specifically for people with MS.

Methods: Quantitative and qualitative data were collected using focus group interviews, facilitator reflection notes, and program evaluations. The data were used to identify the strengths and limitations of the program and to document recommendations for future development. Forty-one individuals met eligibility criteria and were enrolled in the program.

Results: Overall, participants reported that the program had a positive impact on their ability to manage cognitive symptoms. Program components that contributed to successful application of cognitive management strategies included increasing participant's knowledge of cognitive changes, problem-solving through cognitive challenges, practicing strategies through homework assignments, and conducting the program in a group format. Participants recommended that caregivers be included in future programs.

Conclusion: Both content and structural components of the program facilitated participants' ability to manage cognitive changes and contributed to behavior changes made by the participants.

Practice implications: This study points to the benefits of incorporating self-management programs into the cognitive rehabilitation process in MS.