Psychological impact of eosinophilic esophagitis on children and families

Abstract

Because eosinophilic esophagitis (EoE) has only recently been recognized and described, systematic research regarding the natural history of the disease and the short- and long-term effects of treatment is in its infancy. Clinical experience indicates that disease symptoms and treatments can have profound effects on the quality of life of affected children and their families. The responses of children and adolescents are variable, and are dependent on developmental level, temperament, and pre-existing psychological adjustment. Although parents of chronically ill children typically experience increased burden and stress, it is possible that the uncertainties currently associated with EoE contribute to even higher levels of anxiety. Research studies are needed to investigate the impact of EoE symptoms and of current treatments on quality of life and psychological adjustment in children and their families.