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. 2009 Jan 20:9:13.
doi: 10.1186/1472-6963-9-13.

Barriers to healthcare utilization in fatiguing illness: a population-based study in Georgia

Jin-Mann S Lin  1 , Dana J Brimmer, Roumiana S Boneva, James F Jones, William C Reeves
Affiliations

Barriers to healthcare utilization in fatiguing illness: a population-based study in Georgia

Jin-Mann S Lin et al. BMC Health Serv Res. .

Abstract

Background: The purpose of this study was to determine the prevalence of barriers to healthcare utilization in persons with fatiguing illness and describe its association with socio-demographics, the number of health conditions, and frequency of healthcare utilization. Furthermore, we sought to identify what types of barriers interfered with healthcare utilization and why they occurred.

Methods: In a cross-sectional population-based survey, 780 subjects, 112 of them with chronic fatigue syndrome (CFS), completed a healthcare utilization questionnaire. Text analysis was used to create the emerging themes from verbatim responses regarding barriers to healthcare utilization. Multiple logistic regression was performed to examine the association between barriers to healthcare utilization and other factors.

Results: Forty percent of subjects reported at least one barrier to healthcare utilization. Of 112 subjects with CFS, 55% reported at least one barrier to healthcare utilization. Fatiguing status, reported duration of fatigue, insurance, and BMI were significant risk factors for barriers to healthcare utilization. After adjusting for socio-demographics, medication use, the number of health problems, and frequency of healthcare utilization, fatiguing status remained significantly associated with barriers to healthcare utilization. Subjects with CFS were nearly 4 times more likely to forego needed healthcare during the preceding year than non-fatigued subjects while those with insufficient fatigue (ISF) were nearly 3 times more likely.Three domains emerged from text analysis on barriers to healthcare utilization: 1) accessibility; 2) knowledge-attitudes-beliefs (KABs); and, 3) healthcare system. CFS and reported duration of fatigue were significantly associated with each of these domains. Persons with CFS reported high levels of healthcare utilization barriers for each domain: accessibility (34%), healthcare system (25%), and KABs (19%). In further examination of barrier domains to healthcare utilization, compared to non-fatigued persons adjusted ORs for CFS having "accessibility", "KAB" and "Healthcare System" barrier domains decreased by 40%, 30%, and 19%, respectively.

Conclusion: Barriers to healthcare utilization pose a significant problem in persons with fatiguing illnesses. Study results suggested two-fold implications: a symptom-targeted model focusing on symptoms associated with fatigue; and an interactive model requiring efforts from patients and providers to improve interactions between them by reducing barriers in accessibility, KABs, and healthcare system.

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References

    1. Fukuda , Keiji , Straus StevenE, Hickie Ian, Sharpe M, Dobbins JG, Komaroff Anthony. chronic fatigue syndrome: a comprehensive approach to its definition and study. Annals of Internal Medicine. 1994;121:953–959. - PubMed
    1. Reeves William C, Andrew Lloyd SD, Vernon , Klimas Nancy, Jason LeonardA, Bleijenberg G, Evengard B, White PeterD, Nisenbaum R, Unger ElizabethR. International Chronic Fatigue Syndrome Study Group: Identification of ambiguities in the 1994 chronic fatigue syndrome research case definition and recommendations for resolution. BMC Health Services Research. 2003;3:25. doi: 10.1186/1472-6963-3-25. - DOI - PMC - PubMed
    1. Turnbull N, Shaw EJ, Baker Richard, Dunsdon S, Costin N, Britton G, Kuntze S, Norman R. National Institute for Health and Clinical Excellence (NICE) guidelines on Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management of chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy) in adults and children. London: Royal College of General Practitioners; 2007.
    1. Reeves , William C, Jones JamesF, Maloney Elizabeth, Heim Christine, Hoaglin DavidC, Boneva RS, Morrissey Marjorie, Devlin Rebecca. Prevalence of chronic fatigue syndrome in metropolitan, urban, and rural Georgia. Population Health Metrics. 2007;5:5. doi: 10.1186/1478-7954-5-5. - DOI - PMC - PubMed
    1. Jason , Leonard A, Richman JA, Rademaker AW, Jordan KM, Plioplys AV, Taylor RR, McCready W, Huang CF, Plioplys S. A community-based study of chronic fatigue syndrome. Archives of Internal Medicine. 1999;159:2129–2137. doi: 10.1001/archinte.159.18.2129. - DOI - PubMed

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