Racial differences in parents' distrust of medicine and research
- PMID: 19188641
- PMCID: PMC2842910
- DOI: 10.1001/archpediatrics.2008.521
Racial differences in parents' distrust of medicine and research
Abstract
Objective: To assess and compare the attitudes and trust that African American and white parents have toward their children participating in research.
Design: Self-administered, cross-sectional survey of a convenience sample of parents.
Setting: Primary Care Center at Children's Hospital of Pittsburgh from August 2004 through April 2005.
Participants: One hundred ninety parents (140 African American and 50 white parents).
Outcome measure: Parental distrust of medical research as measured by a summative score of distrusting responses to 8 questions assessing trust in research.
Results: African American parents had significantly greater distrust than white parents (67% vs 50%, P = .04). Education was also associated with having significantly greater distrust (74% of those with <high school education vs 44% of college graduates, P = .03). However, African American race remained a predictor of distrust even when education was controlled for (odds ratio, 2.25; 95% confidence interval, 1.01-5.01).
Conclusions: The degree of parental distrust toward medical research was significantly greater among African American parents. Parental distrust may be a barrier to enrollment of African American children in clinical research. Strategies for overcoming the higher level of distrust in African American parents are warranted for ensuring adequate representation of African American children in clinical research.
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Comment in
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Rectifying institutional bias in medical research.Arch Pediatr Adolesc Med. 2009 Feb;163(2):181-2. doi: 10.1001/archpediatrics.2008.552. Arch Pediatr Adolesc Med. 2009. PMID: 19188652 No abstract available.
References
-
- US Department of Health and Human Services. NIH guidelines on the inclusion of women and minorities as subjects in clinical research. Notice Fed Reg. 1994;59:14508–14513.
-
- US Department of Health and Human Services. NIH policy and guidelines on the inclusion of women and minorities as subjects in clinical research: amended. Oct2001. [Accessed November 4, 2007.]. http://grants.nih.gov/grants/funding/women_min/guidelines_amended_10_200....
-
- US Department of Health and Human Services. NIH policy and guidelines on the inclusion of children as participants in research involving human subjects. [Accessed November 4, 2007.]. http://grants.nih.gov/grants/guide/notice-files/not98-024.html Published March 6, 1998.
-
- Clay C, Ellis MA, Amodeo M, Fassler I, Griffin ML. Recruiting a community sample of African American subjects: the nuts and bolts of a successful effort. J Con-temp Soc Serv. 2003;84:396–404.
-
- Ballard EL, Nash F, Raiford K, et al. Recruitment of black elderly for clinical research studies of dementia: the CERAD experience. Gerontologist. 1993;33 (4):561–565. - PubMed
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