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Review
. 2009 May;10(5):331-5.
doi: 10.1038/nrg2573.

Data sharing in genomics--re-shaping scientific practice

Jane Kaye  1 , Catherine Heeney, Naomi Hawkins, Jantina de Vries, Paula Boddington
Affiliations
Review

Data sharing in genomics--re-shaping scientific practice

Jane Kaye et al. Nat Rev Genet. 2009 May.

Abstract

Funding bodies have recently introduced a requirement that data sharing must be a consideration of all funding applications in genomics. As with all new developments this condition has had an impact on scientific practice, particularly in the area of publishing and in the conduct of research. We discuss the challenges that must be addressed if the full benefits of data sharing, as envisaged by funders, are to be realized.

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References

    1. The Digital Archiving Consultancy (DAC) The Bioinformatics Research Centre, University of Glasgow (BRC) The National e-Science Centre (NeSC) Large-scale Data Sharing in the Life Sciences: Data Standards, Incentives, Barriers and Funding Models. Aug, 2005. The “Joint Data Standards Study”. www.nesc.ac.uk/technical_papers/UKeS-2006-02.pdf (2005) (Accessed 05/07/08)
    1. McCarthy MI, Abecasis GR, Cardon LR, Goldstein DB, Little J, Ioannidis JPA, Hirschhorn JN. Genome-wide association studies for complex traits: consensus, uncertainty and challenges. Nature Rev. Genet. 2008;9:356–369. - PubMed
    1. Gibbons SMC, Kaye J, Smart A, Heeney C, Parker M. Governing genetic databases: Challenges facing research regulation and practice. J. Law Soc. 2007;34:163–89.
    1. Couzin J. Genetic privacy. Whole-genome data not anonymous, challenging assumptions. Science. 2008;321:1278. - PubMed
    1. DNA databases shut after identities compromised. Nature. 2008;455:13.

Further Reading Online

    1. Avon Longitudinal Study (ALSPAC): http://www.bristol.ac.uk/alspac/participants/
    1. The Bermuda Principles, First International Strategy Meeting on Human Genome Sequencing (Bermuda, 25-28 February 1996) http://www.ornl.gov/sci/techresources/Human_Genome/research/bermuda.shtml#1 Biobanking and Biomolecular Resources Research Infrastructure (BBMRI): http://www.bbmri.eu/bbmri/
    1. Database of genotype and phenotypes (dbGaP): http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/about.html.
    1. European Genotyping Archive: http://www.ebi.ac.uk/ega/page.php.
    1. Fort Lauderdale Agreement: http://www.genome.gov/Pages/Research/WellcomeReport0303.pdf.

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