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. 2009 Jan 20;1(1):6.
doi: 10.1186/gm6.

Two cheers for GINA?

Amy L McGuire  1 , Mary Anderlik Majumder
Affiliations

Two cheers for GINA?

Amy L McGuire et al. Genome Med. .

Abstract

The Genetic Information Nondiscrimination Act of 2008 (GINA) was recently enacted in the United States. Its supporters have applauded the passage of GINA, and they hope that it will alleviate public fear about genetic discrimination and facilitate genetic testing and participation in genetic research. Critics worry that GINA does not provide adequate protection because it fails to address discrimination on the basis of non-genetic health-related information, and it only regulates the use of genetic information in health insurance and employment. Despite these limitations, GINA represents a major step forward in US policy. Additional research is needed to assess the impact of GINA on industry practice and public opinion. In the mean time, education about GINA and its limitations can help individuals make more informed decisions about genetic testing and participation in genetic research.

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References

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