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. 2009 Jul;35(4):496-504.
doi: 10.1111/j.1365-2214.2009.00983.x.

The quality of life of young people with Tourette syndrome

D Cutler  1 , T Murphy, J Gilmour, I Heyman
Affiliations

The quality of life of young people with Tourette syndrome

D Cutler et al. Child Care Health Dev. 2009 Jul.

Abstract

Background: The study examined a UK sample of 57 young people with Tourette syndrome (TS).

Aims: The purpose of this study was to consider the impact of TS on young people's Quality of Life (QoL).

Methods: The study used a mixed methods design, combining focus groups and questionnaire data. Child report questionnaires measured QoL and TS symptom severity.

Results: The results showed that the QoL of children with TS was significantly worse than that of children in a UK normative sample. Analysis of transcripts from the groups identified four main themes; 'TS can be distressing and disabling', 'struggling to fit into society's expectations of normal behaviour', 'needing to control tics' and 'TS is one part of who I am'.

Conclusions: Poorer QoL was associated with increased symptom severity in terms of tics, Attention Deficit Hyperactivity Disorder diagnosis and obsessive compulsive behaviours.

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