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. 2008 Apr 1;12(1):16-24.

Successful Aging with Sickle Cell Disease: Using Qualitative Methods to Inform Theory

Coretta M Jenerette  1 , Gloria Lauderdale
Affiliations

Successful Aging with Sickle Cell Disease: Using Qualitative Methods to Inform Theory

Coretta M Jenerette et al. J Theory Constr Test. .

Abstract

Little is known about the lives of adults with sickle cell disease (SCD). This article reports findings from a qualitative pilot study, which used life review as a method to explore influences on health outcomes among middle-aged and older adults with SCD, Six females with SCD, recruited from two urban sickle cell clinics in the U.S., engaged in semi-structured, in-depth life review interviews. MaxQDA2 software was used for qualitative data coding and analysis. Three major themes were identified: vulnerability factors, self-care management resources, and health outcomes. These themes are consistent with the Theory of Self-Care Management for Sickle Cell Disease. Identifying vulnerability factors, self-care management resources, and health outcomes in adults with SCD may aid in developing theory-based interventions to meet health care needs of younger individuals with SCD. The life review process is a useful means to gain insight into successful aging with SCD and other chronic illnesses.

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Figures

Figure 1
Figure 1
Theory of Self-care Management for Sickle Cell Disease
Figure 2
Figure 2
Revised Model of Self-care Management for Sickle Cell Disease
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