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. 2010 Jan;19(1):23-30.
doi: 10.1016/j.seizure.2009.10.007. Epub 2009 Nov 30.

Lennox-Gastaut syndrome (LGS): development of conceptual models of health-related quality of life (HRQL) for caregivers and children

Katy Gallop  1 , Diane Wild, Lara Verdian, Mike Kerr, Ann Jacoby, Gus Baker, Annabel Nixon, Joyce A Cramer
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Free article

Lennox-Gastaut syndrome (LGS): development of conceptual models of health-related quality of life (HRQL) for caregivers and children

Katy Gallop et al. Seizure. 2010 Jan.
Free article

Abstract

LGS is a severe form of childhood epilepsy which is characterized by multiple seizures and cognitive impairment. Semi-structured interviews were conducted with 40 parents of children with LGS in the US, UK, and Italy. Parents were asked to report on their perceptions of the HRQL of their child and also to describe the impact on their own HRQL. Thematic analysis was conducted to develop themes relating to the impact on HRQL. The themes were organized into conceptual models of the impact of LGS on the HRQL of the parent and the child. The models demonstrate the complex relationships between the components of LGS and their impact on HRQL.

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