Telemedicine diagnosis for fetal alcohol syndrome - The Manitoba experience
- PMID: 20046287
- PMCID: PMC2794808
- DOI: 10.1093/pch/7.3.147
Telemedicine diagnosis for fetal alcohol syndrome - The Manitoba experience
Abstract
The diagnosis of fetal alcohol syndrome has been possible, with increasing precision, since the original descriptions in the 1970s. Multidisciplinary diagnostic approaches have been recognized as most appropriate, although they are often not available. Telemedicine has been used in Canada over the same time period for a variety of diagnositc applications.Since 1999, funding by the Manitoba government has allowed the consolidation of services for children with prenatal alcohol exposure in Manitoba, and has allowed the development of a format for diagnosis using telemedicine.This paper describes the authors' experience with the above and offers observations that may be helpful to other programs that are focused on developing this format for the diagnosis of fetal alcohol syndrome.
Le diagnostic de syndrome d’alcoolisme foetal est possible et devient de plus en plus précis depuis les premières descriptions, faites dans les années 1970. Des méthodes diagnostiques multidisciplinaires sont admises comme les plus pertinentes, bien qu’elles ne soient pas toujours disponibles.
La télémédecine est utilisée au Canada depuis la même époque, pour diverses applications diagnostiques.
Depuis 1999, une subvention accordée par le gouvernement manitobain permet de regrouper les services pour les enfants du Manitoba exposés à l’alcool pendant la période prénatale, ainsi que d’élaborer une grille diagnostique au moyen de la télémédecine.
Le présent article décrit l’expérience des auteurs avec ces pratiques et offre des observations susceptibles d’être utiles pour d'autres programmes axés sur l’élaboration d’une telle grille appliquée au syndrome d’alcoolisme foetal.
Keywords: Fetal alcohol syndrome; Telemedicine.
Figures
Similar articles
-
"Giving voice": Evaluation of an integrated telehealth community care model by parents/guardians of children diagnosed with fetal alcohol spectrum disorder in Manitoba.Telemed J E Health. 2014 May;20(5):478-84. doi: 10.1089/tmj.2013.0161. Epub 2014 Feb 25. Telemed J E Health. 2014. PMID: 24568178
-
Telemedicine to play key role in combating fetal alcohol syndrome on the prairie.Telemed Virtual Real. 1998 Dec;3(12):133-4. Telemed Virtual Real. 1998. PMID: 10345181 No abstract available.
-
Budget Impact Analysis of an Epigenetic Test Used for Diagnosing Fetal Alcohol Spectrum Disorder from the Perspective of a Laboratory Budget Holder in Manitoba, Canada.Pharmacoecon Open. 2022 Mar;6(2):253-263. doi: 10.1007/s41669-021-00304-4. Epub 2021 Oct 10. Pharmacoecon Open. 2022. PMID: 34628597 Free PMC article.
-
Epidemiology of fetal alcohol syndrome in American Indians, Alaskan Natives, and Canadian Aboriginal peoples: a review of the literature.Public Health Rep. 1994 Sep-Oct;109(5):688-93. Public Health Rep. 1994. PMID: 7938391 Free PMC article. Review.
-
Connecting People with People: Diagnosing Persons with Fetal Alcohol Spectrum Disorder Using Telehealth.J Autism Dev Disord. 2021 Apr;51(4):1067-1080. doi: 10.1007/s10803-020-04607-z. J Autism Dev Disord. 2021. PMID: 32648146 Review.
Cited by
-
A systematic review of the use of telehealth to facilitate a diagnosis for children with developmental concerns.Res Dev Disabil. 2022 Aug;127:104269. doi: 10.1016/j.ridd.2022.104269. Epub 2022 May 27. Res Dev Disabil. 2022. PMID: 35636261 Free PMC article.
-
Technologies for Supporting Individuals and Caregivers Living With Fetal Alcohol Spectrum Disorder: Scoping Review.JMIR Ment Health. 2024 Jul 11;11:e51074. doi: 10.2196/51074. JMIR Ment Health. 2024. PMID: 38994826 Free PMC article.
-
Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis.CMAJ. 2005 Mar 1;172(5 Suppl):S1-S21. doi: 10.1503/cmaj.1040302. CMAJ. 2005. PMID: 15738468 Free PMC article.
-
Development and Evaluation of a Virtual Model for Fetal Alcohol Spectrum Disorder (FASD) Assessment and Diagnosis in Children: A Pilot Study.Children (Basel). 2023 Jan 20;10(2):196. doi: 10.3390/children10020196. Children (Basel). 2023. PMID: 36832325 Free PMC article.
-
Diagnosing fetal alcohol spectrum disorder: History, challenges and future directions.Paediatr Child Health. 2009 Apr;14(4):231-7. doi: 10.1093/pch/14.4.231. Paediatr Child Health. 2009. PMID: 20357921 Free PMC article.
References
-
- Jones KL, Smith DW, Ulleland CN, Streissguth AP. Patterns of malformation in offspring of chronic alcoholic mothers. Lancet. 1973;i:1267–71. - PubMed
-
- Rossett HL. A clinical perspective of Fetal Alcohol Syndrome (FAS) Alcohol Clinic Exp Res. 1980;4:118. - PubMed
-
- Clarren S, Sampson P, Larsen D, et al. Facial effects of fetal alcohol exposure: Assessment by photographs and morphometric analysis. Am J Med Genet. 1989;26:651–66. - PubMed
-
- Health Canada Treatment and Rehabilitation Unit. Ottawa: Canadian Centre on Substance Abuse; Feb, 2001. A synthesis of findings from recent Health Canada investigations concerning Fetal Alcohol Syndrome(FAS)-related issues.
-
- Dunn EV, Higgins CA. Telemedicine in Canada: An overview. Dimens Health Serv. 1984;61:16–8. - PubMed
LinkOut - more resources
Full Text Sources