Do Older Adults Know Their Spouses' End-of-Life Treatment Preferences?

Abstract

When terminally ill patients become mentally incapacitated, the patient's surrogate often makes treatment decisions in collaboration with health care providers. We examine how surrogates' errors in reporting their spouse's preferences are affected by their gender, status as durable power of attorney for health care (DPAHC), whether the surrogate and spouse held discussions about end-of-life preferences, and the spouse's health status. We apply structural equation models to data from 2,750 married couples in their mid 60s who participated in the 2004 wave of the Wisconsin Longitudinal Study. Surrogates reported their spouse's preferences incorrectly 13 and 26 percent of the time in end-of-life scenarios involving cognitive impairment and physical pain, respectively. Surrogates projected their own preferences onto the spouse. Similar patterns emerged regardless of surrogate gender, surrogate status as DPAHC, marital discussions about end-of-life, or spousal health status. We discuss implications for the process of surrogate decision-making and for future research.

Figure 1

Structural Equation Model of Couples' End-of-Life Preferences, Married Participants in the Wisconsin Longitudinal Study Module on End-of-Life Treatment Preferences, 2004

Figure 2

Results of Baseline Structural Equation Model: Married Participants in the Wisconsin Longitudinal Study Module on End-of-Life Treatment Preferences, 2004