Research participation of individuals with dementia
- PMID: 20077970
- DOI: 10.3928/19404921-20090401-01
Research participation of individuals with dementia
Abstract
Decisional capacity is a precious component of personhood and is progressively diminished in dementia. Conducting research with individuals with dementia demands a commitment to ensure the quest for knowledge does not overwhelm the rights of those it is intended to protect. The purposes of this article are to describe current understandings of the concept of decisional capacity, describe recent regulatory developments related to the consideration of additional protections for decisionally impaired adults, and provide recommendations for nurse investigators working with this vulnerable group.
Copyright 2009, SLACK Incorporated.
Similar articles
-
Considerations of informed consent and decision-making competence in older adults with cognitive impairment.Res Gerontol Nurs. 2009 Apr;2(2):103-11. doi: 10.3928/19404921-20090401-08. Res Gerontol Nurs. 2009. PMID: 20077971 Review.
-
Informed consent for research involving people with dementia: a grey area.Contemp Nurse. 2010 Feb-Mar;34(2):230-6. doi: 10.5172/conu.2010.34.2.230. Contemp Nurse. 2010. PMID: 20509807
-
A new brief instrument for assessing decisional capacity for clinical research.Arch Gen Psychiatry. 2007 Aug;64(8):966-74. doi: 10.1001/archpsyc.64.8.966. Arch Gen Psychiatry. 2007. PMID: 17679641
-
Exploring the gray areas of informed consent.Nurs Manage. 2000 Jul;31(7):20-5; quiz 25-6. Nurs Manage. 2000. PMID: 15127502
-
Dementia and the law.Eur J Health Law. 2006 Sep;13(3):209-17. doi: 10.1163/157180906778852385. Eur J Health Law. 2006. PMID: 17190348 Review.
Cited by
-
Informed consent in dementia research: how Public Involvement can contribute to addressing "old" and "new" challenges.Front Dement. 2025 Feb 4;4:1536762. doi: 10.3389/frdem.2025.1536762. eCollection 2025. Front Dement. 2025. PMID: 39967729 Free PMC article.
-
Using simulation to uncover care aides physiological and emotional responses to their work: A research protocol.PLoS One. 2025 Jul 17;20(7):e0325765. doi: 10.1371/journal.pone.0325765. eCollection 2025. PLoS One. 2025. PMID: 40674390 Free PMC article.
-
A single-blind, parallel-group randomised trial of a Technology-assisted and remotely delivered Cognitive Behavioural Therapy intervention (Tech-CBT) versus usual care to reduce anxiety in people with mild cognitive impairment and dementia: study protocol for a randomised trial.Trials. 2023 Jun 20;24(1):420. doi: 10.1186/s13063-023-07381-2. Trials. 2023. PMID: 37340492 Free PMC article.
-
The protocol of a clinical quality registry for dementia and mild cognitive impairment (MCI): the Australian dementia network (ADNeT) Registry.BMC Geriatr. 2020 Sep 7;20(1):330. doi: 10.1186/s12877-020-01741-2. BMC Geriatr. 2020. PMID: 32894049 Free PMC article.
MeSH terms
LinkOut - more resources
Full Text Sources
Medical