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Review
. 2009 Apr;2(2):112-21.
doi: 10.3928/19404921-20090401-04.

Diagnostic labels, stigma, and participation in research related to dementia and mild cognitive impairment

Linda Garand  1 , Jennifer H Lingler, Kyaien O Conner, Mary Amanda Dew
Affiliations
Review

Diagnostic labels, stigma, and participation in research related to dementia and mild cognitive impairment

Linda Garand et al. Res Gerontol Nurs. 2009 Apr.

Abstract

Health care professionals use diagnostic labels to classify individuals for both treatment and research purposes. Despite their clear benefits, diagnostic labels also serve as cues that activate stigma and stereotypes. Stigma associated with the diagnostic labels of dementia and mild cognitive impairment (MCI) can have a significant and negative impact on interpersonal relationships, interactions with the health care community, attitudes about service utilization, and participation in clinical research. The impact of stigma also extends to the family caregivers of individuals bearing such labels. In this article, we use examples from our investigations of individuals with dementia or MCI and their family caregivers to examine the impact of labeling and stigma on clinical research participation. We also discuss how stigma can affect numerous aspects of the nursing research process. Strategies are presented for addressing stigma-related barriers to participation in clinical research on dementia and MCI.

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References

    1. Alzheimer's Association. Stigma cited as top concern for people with Alzheimer's disease. 2008a. Retrieved September 1, 2008, from http://www.alz.org./news_and_events_14351.asp.
    1. Alzheimer's Association. Voices of Alzheimer's disease: A summary report of the nationwide town hall meetings for people with early stage dementia. 2008b. Retrieved September 2, 2008, from http://www.alz.org/national/documents/report_townhall.pdf.
    1. American Psychiatric Association. Diagnostic and statistical manual of mental disorders. 4th. Washington, DC: Author; 2000. Text Rev.
    1. Benbow SM, Reynolds D. Challenging the stigma of Alzheimer' disease. Hospital Medicine. 2000;61:174–177. - PubMed
    1. Bowes A, Wilkinson H. “We didn't know it would get that bad”: South Asian experiences of dementia and the service response. Health and Social Care in the Community. 2003;11:387–396. - PubMed

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