Going the distance: overcoming challenges in recruitment and retention of Black and White women in multisite, longitudinal study of predictors of coronary heart disease
- PMID: 20077981
- PMCID: PMC2854651
- DOI: 10.3928/19404921-20090803-01
Going the distance: overcoming challenges in recruitment and retention of Black and White women in multisite, longitudinal study of predictors of coronary heart disease
Abstract
High recruitment and retention rates are hallmarks of scientifically rigorous longitudinal research. However, recruitment and retention are challenging, especially with older adults and minorities. In this article, we discuss strategies that have enabled us to retain more than 80% of both Black and White women in a 5-year observational study. To overcome challenges such as staff turnover and introduction of computerized record systems, we developed a time-saving handout, streamlined procedures for documenting contact information, and motivated site staff through weekly personal contact. We responded to problems with mailed privacy consent forms by garnering approval for verbal consent that allowed immediate response to participants' questions. In addition to standard steps to minimize attrition, we encouraged ongoing participation with personal letters following interviews, "refrigerator reminders" of the next interview date, and "missing you" letters following missed appointments. We believe these and other strategies described in this article were responsible for our high retention rate.
Copyright 2009, SLACK Incorporated.
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References
-
- Adelman AM, Daly MP. Initial evaluation of the patient with suspected dementia. American Family Physician. 2005;71:1745. - PubMed
-
- Almeida L, Azevedo B, Nunes T, Vaz-da-Silva M, Soares-da-Silva P. Why healthy subjects volunteer for phase I studies and how they perceive their participation? European Journal of Clinical Pharmacology. 2007;63:1085–1094. - PubMed
-
- Arean PA, Gallagher-Thompson D. Issues and recommendations for the recruitment and retention of older ethnic minority adults into clinical research. Journal of Consulting & Clinical Psychology. 1996;64:875–880. - PubMed
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