The plight of caring for young patients with frontotemporal dementia
- PMID: 20107238
- PMCID: PMC10845623
- DOI: 10.1177/1533317509352335
The plight of caring for young patients with frontotemporal dementia
Abstract
We present the case of a 39-year-old patient with frontotemporal dementia. This case depicts the complexities in the process leading to the diagnosis, treatment, and placement of young patients presenting with severe psychiatric symptoms as the first signs of an underlying neurological disease. Obstacles in the health care system and residential placement process that hinder the optimal and timely care of such difficult cases are discussed. Practical solutions are offered that center upon better awareness and education and the provision of additional resources. These interventions are likely to provide a positive return on investment for the medical system and could be used as strong levers for new health policies relevant to younger patients with neurological illness.
Similar articles
-
The frontotemporal dementias.Psychiatr Clin North Am. 2015 Jun;38(2):193-209. doi: 10.1016/j.psc.2015.02.001. Epub 2015 Mar 18. Psychiatr Clin North Am. 2015. PMID: 25998110 Review.
-
Management of frontotemporal dementia in mental health and multidisciplinary settings.Int Rev Psychiatry. 2013 Apr;25(2):230-6. doi: 10.3109/09540261.2013.776949. Int Rev Psychiatry. 2013. PMID: 23611352 Free PMC article. Review.
-
Interventions and diagnostics in Alzheimer's disease and related conditions.Am J Alzheimers Dis Other Demen. 2010 Mar;25(2):107-8. doi: 10.1177/1533317510363778. Am J Alzheimers Dis Other Demen. 2010. PMID: 20229623 Free PMC article. No abstract available.
-
Frontotemporal dementia - features, diagnosis and management.Aust Fam Physician. 2011 Dec;40(12):968-72. Aust Fam Physician. 2011. PMID: 22146324
-
Self-awareness in neurodegenerative disease relies on neural structures mediating reward-driven attention.Brain. 2014 Aug;137(Pt 8):2368-81. doi: 10.1093/brain/awu161. Epub 2014 Jun 20. Brain. 2014. PMID: 24951639 Free PMC article.
Cited by
-
Young onset dementia: Public involvement in co-designing community-based support.Dementia (London). 2020 May;19(4):1051-1066. doi: 10.1177/1471301218793463. Epub 2018 Aug 19. Dementia (London). 2020. PMID: 30122064 Free PMC article.
-
Diagnosing early onset dementia and then what? A frustrating system of aftercare resources.Int J Gen Med. 2012;5:81-6. doi: 10.2147/IJGM.S26523. Epub 2012 Jan 19. Int J Gen Med. 2012. PMID: 22287850 Free PMC article.
-
Local genetic covariance analysis with lipid traits identifies novel loci for early-onset Alzheimer's Disease.PLoS Genet. 2025 Mar 17;21(3):e1011631. doi: 10.1371/journal.pgen.1011631. eCollection 2025 Mar. PLoS Genet. 2025. PMID: 40096060 Free PMC article.
-
Extremely Early-Onset Frontotemporal Dementia: A Case Report and Literature Review.J Alzheimers Dis. 2022;90(3):1139-1151. doi: 10.3233/JAD-220679. J Alzheimers Dis. 2022. PMID: 36214000 Free PMC article. Review.
References
-
- Boccardi M., Laakso MP, Bresciani L., et al. The MRI pattern of frontal and temporal brain atrophy in fronto-temporal dementia. Neurobiol Aging. 2003;24(1):95-103. - PubMed
-
- Kipps CM, Davies RR, Mitchell J., Kril JJ, Halliday GM, Hodges JR Clinical significance of lobar atrophy in frontotemporal dementia: application of an MRI visual rating scale. Dement Geriatr Cogn Disord . 2007;23(5):334-342. - PubMed
-
- Seelaar H., Kamphorst W., Rosso SM, et al. Distinct genetic forms of frontotemporal dementia. Neurology. 2008;71(16):1220-1126. - PubMed
-
- Knibb JA, Kipps CM, Hodges JR Frontotemporal dementia. Curr Opin Neurol. 2006;19(6):565-571. - PubMed
-
- Neary D., Snowden J., Mann D. Frontotemporal dementia. Lancet Neurol. 2005. ;4:771-780. - PubMed
Publication types
MeSH terms
LinkOut - more resources
Full Text Sources
Medical