Needs of older caregivers of patients with advanced cancer
- PMID: 20122032
- PMCID: PMC4366008
- DOI: 10.1111/j.1532-5415.2009.02516.x
Needs of older caregivers of patients with advanced cancer
Abstract
Objectives: To determine whether age or stage of cancer can be used to identify caregivers at high risk for excessive burden or distress.
Design: Descriptive data collected as part of a psychosocial research registry, comparing younger caregivers with older and caregivers of early-stage patients with those of later stage.
Participants: Caregivers of newly diagnosed adult cancer patients.
Measurements: Caregiver Reaction Assessment (CRA), the Profile of Mood States (POMS), single-item indicators from the Patient Reported Outcome Measurement Information System set, and the Medical Outcomes Study Social Support (MOS-SS) Scale. Patient information was obtained from the medical record.
Results: Younger caregivers and caregivers of patients with Stage I and II cancer identified a greater lack of family support than older caregivers and caregivers of patients with Stage III and IV cancer. Significant regression models were found for three CRA subscales (Disrupted Schedule, Lack of Family Support, and Health Problems), as well as for the POMS depression and fatigue scales. Caregiver social support (MOS-SS) made the only significant contribution to the models. There were significant differences between caregivers with high and low levels of social support on almost all measures of well-being.
Conclusion: Incorporating formal assessment of social support may be useful in identifying at-risk caregivers. In addition, there is a need to further investigate which dimensions of social support are most strongly related to measures of well-being.
Conflict of interest statement
References
-
- American Society of Clinical Oncology. Cancer care during the last phase of life. J Clin Oncol. 1998;16:1986–1996. - PubMed
-
- Lipscomb J, Donaldson MS. Outcomes research at the National Cancer Institute: Measuring, understanding, and improving the outcomes of cancer care. Clin Ther. 2003;25:699–712. - PubMed
-
- Daly BJ, Douglas SL, Foley H, et al. Psychosocial registry for persons with cancer: A method of facilitating quality of life and symptom research. Psychooncology. 2007;16:358–364. - PubMed
-
- Given B, Stommel M, Collins C, et al. Responses of elderly spouse caregivers. Res Nurs Health. 1990;13:77–85. - PubMed
-
- Given C, Given B, Stommell M, et al. The caregiver reaction assessment for caregivers to persons with chronic physical and mental impairments. Res Nurs Health. 1992;15:271–283. - PubMed
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