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. 2010 May;19(4):585-94.
doi: 10.1007/s11136-010-9618-4. Epub 2010 Mar 5.

Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey

Debra E Irwin  1 , Brian D Stucky, David Thissen, Esi Morgan Dewitt, Jin Shei Lai, Karin Yeatts, James W Varni, Darren A DeWalt
Affiliations

Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey

Debra E Irwin et al. Qual Life Res. 2010 May.

Abstract

Purpose: This paper describes a large-scale administration of the Patient-Reported Outcomes Measurement Information System (PROMIS) pediatric items to evaluate measurement characteristics.

Methods: Each child completed one of seven test forms containing items from a pool of 293 PROMIS items and four legacy scales. PROMIS items covered six domains (physical function, emotional distress, social role relationship, fatigue, pain, and asthma).

Results: From January 2007 to May 2008, 4,129 children aged 8-17 were enrolled. The sample was 51% female, 55% aged 8-12, 42% minority race and 17% were Hispanic ethnicity. Approximately, 35% of the children participating in the survey consulted a clinician for a chronic illness diagnosis or treatment within 6 months prior to study enrollment.

Conclusions: The final PROMIS pediatric item banks include physical function (n = 52 items), emotional distress (n = 35 items), social role relationships (n = 15 items), fatigue (n = 34 items), pain (n = 13 items), and asthma (n = 17 items). The initial calibration data were provided by a diverse set of children with varying health states (e.g., children with a variety of common chronic illnesses) and racial/ethnic backgrounds.

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Figures

Fig. 1
Fig. 1
Mean PedsQL Generic Core Scales scores. Healthy healthy population of children, GI gastrointestinal disease, Cardiac cardiac disease, ESRD end-stage renal disease, Pych psychological disease, Rheum rheumatological disease, CP cerebral palsy. *Clinic population samples [15]. **PROMIS general clinic and school sample population
Fig. 2
Fig. 2
a Mean KIDSCREEN-52 scores—males. b Mean KIDSCREEN-52 scores—females. Psych psychological, Self-percept self-perception. *European Normdata [10]. **PROMIS general clinic and school sample population
See this image and copyright information in PMC

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