Well-being and sexual function outcomes in women with vaginal agenesis

Abstract

Objective: To assess long-term quality of life and sexual satisfaction outcomes of women treated for vaginal agenesis.

Design: An audit project using questionnaires to assess quality of life (World Health Organization Quality of Life Bref [WHOQoL-Bref]) and sexual satisfaction (Golombok Rust Inventory of Sexual Satisfaction [GRISS]).

Setting: Gynecology Department of Royal Children's Hospital.

Patient(s): Women with vaginal agenesis.

Intervention(s): Medical data were extracted from notes. Women were contacted at their review consultation or were offered the opportunity for review and participation in the audit.

Main outcome measure(s): WHOQoL-Bref and GRISS were measured. Correlation with medical details and treatment method was undertaken.

Result(s): Age range was 16-71 years (median, 23 years). WHOQoL-Bref (n=28) scores (mean±SD, 4.2±0.8), were similar to the mean Australian population score. The GRISS questionnaire (n=20) revealed that 75% of women had overall satisfactory scores. WHOQoL scores had a high correlation with GRISS scores. Time since diagnosis correlated to GRISS scores with 12 of 13 diagnosed>5 years earlier having satisfactory results. Women without a hymen had more problems with vaginismus.

Conclusion(s): General outcomes are good for these women, although vaginismus was an issue. There was a correlation between lower health satisfaction scores, feeling less feminine and feeling down, but not GRISS.