Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Case Reports
. 2010 Dec;25(8):634-40.
doi: 10.1177/1533317510385811.

Needs in early onset dementia: A qualitative case from the NeedYD study

Christian Bakker  1 , Marjolein E de Vugt, Myrra Vernooij-Dassen, Deliane van Vliet, Frans R J Verhey, Raymond T C M Koopmans
Affiliations
Case Reports

Needs in early onset dementia: A qualitative case from the NeedYD study

Christian Bakker et al. Am J Alzheimers Dis Other Demen. 2010 Dec.

Abstract

Objectives: The aim was to explore the experiences of a caregiver of a patient with early onset dementia (EOD) and the needs of patient and caregiver.

Methods: A single case study design was used to explore (1) unmet needs of patient and caregiver and (2) caregiver's experiences of transitions in care and health care services. A qualitative analysis was used to examine the data.

Results: This study shows that a patient with EOD and the caregiver were confronted with specific issues during the care process, namely (1) prolonged time to diagnosis, (2) a lack of fit between needs and services, (3) the strain of dedication to care versus the caregiver's own future perspective, (4) the need for response of health care services to changing individual preferences.

Conclusion: This study illustrates specific issues related to early onset dementia that require specialized EOD care such as the differential and changing needs of patients and caregivers.

PubMed Disclaimer

References

    1. Harvey R., Skelton-Robinson M., Rossor M. The Prevalence and causes of dementia in people under the age of 65 years . J Neurol Neurosurg Psychiatr. 2003;74(9):1206-1209. - PMC - PubMed
    1. Fujihara S., Brucki S., Carvalho A., Piccolo A. Prevalence of pre-senile dementia in a tertiary outpatient clinic. Arq Neuropsiquiatr. 2004;62(3A):592-595. - PubMed
    1. Panegyres P., Frencham K. Course and causes of suspected dementia in young adults: a longitudinal study . Am J Alzheimers Dis Other Demen. 2007;22(1):48-56. - PMC - PubMed
    1. Shinagawa S., Ikeda M., Toyota Y., et al. Frequency and clinical characteristics of early-onset dementia in consecutuve patients in a memory clinic. Dementia Geriatr Cogn Disord. 2007; 24(1):42-47. - PubMed
    1. Harris P., Keady J. Living with early onset dementia: exploring the experience and developing evidence-based guidelines for practice. Alzheim Care Q. 2004;5(2):111-122.

Publication types